CommunityPeople whose lives are affected by ITP, like other people affected by rare conditions, often feel as if they have to "go it alone." It is very likely that they have no daily personal contact with another individual who can really relate to the challenges involved with ITP and its management.
Fortunately, the prevalence of the internet now gives those of us affected in some way by ITP the chance to form a real community. The ITP Foundation website provides patients, family members and medical professionals with access to a wide range of information about all aspects of the disease.
Equally as important, our Chat Room provides these people with the opportunity to "meet" online and to share their experiences - their frustrations, their successes, their challenges. A mother can find out if other parents share her feelings whenever she takes her child in for treatment. A young boy with newly-diagnosed ITP can get encouragement from another boy who knows what he is going through.
Most importantly, people can learn that they are not alone - that other people are walking in the same shoes or have trod the same path.
Developing that sense of community is vitally important and can play a positive role in the management of a person's ITP. It only takes a few moments to register for our Chat Room. We hope you will do so and help us build and strengthen the ITP community.
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